NHS Digital Data Release Register - reformatted
UCL Institute of Education (IoE)
Opt outs honoured: Y
Basis: Section 251 approval is in place for the flow of identifiable data
Format: Identifiable Sensitive
How often: Ongoing
When: unknown — 11/2016
HSCIC Id: DARS-NIC-147922-T7W2F-v0.0
Data: MRIS - Cause of Death Report
Data: MRIS - Scottish NHS / Registration
Data: MRIS - Cause of Death Report
Data: MRIS - Cohort Event Notification Report
Data: MRIS - Scottish NHS / Registration
Data: MRIS - Cohort Event Notification Report
Data: MRIS - Scottish NHS / Registration
Data: MRIS - Cause of Death Report
Data: MRIS - Cohort Event Notification Report
Output: There have been hundreds of published journal articles, books, chapters, reports or conference presentations based on data from the 1970 British Cohort Study, details can be found at the CLS website - http://www.cls.ioe.ac.uk/Publications.aspx?sitesectionid=1145&sitesectiontitle=Briefings+and+case+studies
On receipt of the data, CLS will process the files and load more recent addresses to our database. CLS will also contact these cohort members to invite them to continue to participate in the study. It will be made explicitly clear to study members that they can withdraw from the study if they no longer wish to participate.
Participant contact information is held in a secure address database at the Centre for Longitudinal Studies. Any participants choosing not to take part in the study are flagged on this database with a code denoting whether their refusal is temporary (i.e. to a particular wave of data collection) or permanent (i.e. they wish to have no further involvement in the study). Anonymised survey data and confidential data from the address database are retained unless the participant specifically asks us not to, in which cases this data is deleted.
Activities: ACTIVITY 1. NHS address tracing. CLS wish to use the HSCIC patient status and tracking products which uses NHS registration data to trace as many study members as possible, either by finding new address details or verifying existing address details for the cohort.
1.1 CLS supply the HSCIC with a file of around 1500 ‘untraced’ cohort members to match to the NHS data. The file supplied will only contain eligible study members who have participated in at least one wave of BCS70. It will not include study members known to have died or to have withdrawn from the study. The file will contain the following data items:
- CLS identifier,
- First name,
- Last name,
- Middle name (where available),
- Date of birth,
- Sex,
- Last known address, and postcode,
NHS numbers (where held).
1.2 CLS want all 1500 cases to be sent for auto-matching.
1.3 Those not matched via auto-matching should be operator matched.
1.4. The HSCIC would supply the following details to CLS.
- CLS identifier,
- Latest surname,
- Latest forename,
- Latest middle name (where available),
- Date of birth,
- Gender,
- Latest address and postcode,
- Fact of Death
- Date of address registration or update.
- Cause of Death
In addition to the receipt of any 'new' matched address information for our cohort members, CLS would like HSCIC to add an additional variable that describes the outcome of the matching process to the data that is returned to us. This additional variable will allocate each cohort member to one of the following three categories:
• new/different address found,
• existing address confirmed,
• no match found
Objective: The 1970 British Cohort Study (BCS70) is the third of Britain’s world renowned national longitudinal birth cohort studies. It follows all those born in a particular week in 1970 throughout their lives, charting the effects of events and circumstances in early life on outcomes and achievements later on.
The study is run by the Centre for Longitudinal Studies (CLS), at the Institute of Education, University of London and funded by the Economic and Social Research Council.
Since 1970 there have been eight attempts to gather information from the whole cohort. Over time, the scope of enquiry has broadened from a medical focus at birth, to encompass physical and educational development at the age of five, physical, educational and social development at the ages of ten and sixteen, and then to include economic development and other wider factors at ages 26, 30, 34, 38 and 42. Future sweeps of the study will take place every 5 years.
The ongoing success of the study depends on maintaining contact with as many study members as possible.
The aim is to trace as many study members as possible in advance of the next wave of fieldwork.
CLS will supply the HSCIC with a file of study members and their last known address, extracted from the Centre for Longitudinal Studies (CLS) address database. CLS ask that these details are matched with NHS Registration Data and registered addresses supplied, where available.
The data supplied will be entered into the CLS secure address database and used to maintain contact with study members. Matched individuals will be contacted and invited to continue participating in the study. On making contact it will be made explicitly clear that they can informCLS that they no longer wish to participate in the study and they will not be contacted again.
Benefits: The 1970 British Cohort Study is the third of Britain’s world renowned national longitudinal birth cohort studies. Each follows a large sample of individuals born over a limited period of time through the course of their lives, charting the effects of events and circumstances in early life on outcomes and achievements later on. They show how histories of health, wealth, education, family and employment are interwoven for individuals and vary between them.
The study has its origins in the British Births Survey in which information was gathered about almost 17,500 babies. The original study focused on the circumstances and outcomes of birth but since then the study has broadened in scope to map all aspects of health, education, social and economic development. Forthcoming sweeps will provide an updated picture of the circumstances and experiences of those born in the early seventies in England, Scotland and Wales and will help develop an understanding of their progress into the latter period of their lives.
The data collected by the study is used extensively by researchers in the UK and elsewhere and has had much impact on policy over the years, for example the Welsh Government policy on early years planning - http://www.closer.ac.uk/news-opinion/2013/welsh-governments-early-years-childcare-plan-draws-evidence/The continuing success of the study will be underpinned by the successful matching of untraced cases.
Source: NHS Digital.