NHS Digital Data Release Register - reformatted
This is a readable version of NHS England's Data Release Registers since April 2016 - the "complete" list of where NHS England sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS England publish more data.
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2025/03), NHSD chose to respect optouts in 30% of 2180 data releases of personal data.
Was the National Data Opt Out respected:
- 1535: No - "Does not include the flow of confidential data"
- 303: Consent (Reasonable Expectation)
- 194: Statutory exemption to flow confidential data without consent
- 50: Section 251 NHS Act 2006
- 48: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
- 39: Yes
- 8: Mixture of confidential data flow(s) with consent and non-confidential data flow(s)
- 3: No -
Organisations with projects that fully ignored opt outs since 2018:
241 organisations since 2018.
- Monitor
- Carnall Farrar Limited
- Harvey Walsh Ltd
- Methods Analytics Ltd
- The Health Foundation
- London School Of Economics And Political Science (lse)
- Wilmington Healthcare
- The Nuffield Trust For Research And Policy Studies In Health Services
- National Audit Office
- Telstra Health Uk Limited
- Chks Limited
- Barts And The London School Of Medicine And Dentistry
- Health Iq Ltd
- I5 Health Limited
- Compufile Systems Limited
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Lightfoot Solutions Uk Ltd
- Our Future Health
- Rand Europe Community Interest Company
- Civil Eyes Research Ltd
- Novavax, Inc.
- NHS National Services Scotland
- The Boston Consulting Group Uk Llp
- Astrazeneca Uk Limited
- Cegedim Rx Ltd
- Derby City Council
- London Borough Of Hackney
- Grail Bio Uk Ltd
- Meditrends Ltd
- London Borough Of Newham
- Walsall Metropolitan Borough Council
- London Borough Of Enfield
- City Of Westminster
- Durham County Council
- London Borough Of Hillingdon
- Optum Health Solutions Uk Limited
- Oxfordshire County Council
- London Borough Of Tower Hamlets
- Bolton Metropolitan Borough Council
- Hull City Council
- Harrow Council
- London Borough Of Haringey
- Stoke-on-trent City Council
- Prescqipp Cic
- Met Office
- Cambridge Centre For Health Services Research
- Epsom And St Helier University Hospitals NHS Trust
- GLAXOSMITHKLINE RESEARCH & DEVELOPMENT LIMITED
- Gateshead Metropolitan Borough Council
- The King's Fund
- Home Office
- La-ser Europe Limited (a Certara Company)
- Bangor University
- Public Health Scotland
- Private Healthcare Information Network (phin)
- Medeanalytics International Limited
- University Of Bath
- NHS Coventry And Warwickshire Integrated Care Board
- Nec Software Solutions
- Office For Health Improvement And Disparities
- Device Access Uk Ltd
- University Hospitals Of Derby And Burton NHS Foundation Trust
- Bedford Borough Council
- Stockton-on-tees Borough Council
- Crab Clinical Informatics
- NHS Norfolk And Waveney Integrated Care Board
- Department For Transport
- Renal Registry
- Market And Opinion Research International Limited
- London Borough Of Croydon
- Archus Limited
- Nuffield Department Of Primary Health Sciences
- Healthcare Quality Improvement Partnership (hqip)
- Northern Care Alliance NHS Foundation Trust
- Roehampton University
- University Hospitals Dorset NHS Foundation Trust
- Natcen Social Research
- Department Of Health And Social Care
- I5 Health
- Royal Papworth Hospital NHS Foundation Trust
- Kpmg Llp
- London Borough of Newham Council
- University Of Hull
- Ernst And Young Llp
- North Tyneside Council
- Dr. Foster Limited
- London Borough Of Camden
- Ignite Data Limited
- London Borough of Tower Hamlets Council
- Westminster City Council
- Rand Europe
- Ipsos
- Adelphi Group Limited
- York And Scarborough Teaching Hospitals NHS Foundation Trust
- Oliver Wyman
- Regional Drug & Therapeutic Centre
- Royal National Orthopaedic Hospital NHS Trust
- Kingston Hospital NHS Foundation Trust
- National Institute For Health And Care Excellence (nice)
- Health Data Research Uk
- Adelphi Real World
- Medway NHS Foundation Trust
- Northumberland, Tyne And Wear NHS Foundation Trust
- Southend-on-sea Borough Council (unitary)
- 2020 Delivery Ltd
- Gateshead Council
- Leeds Teaching Hospitals NHS Trust
- 3m United Kingdom Plc
- Neil Wilson Associates Llp
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Birmingham Women's And Children's NHS Foundation Trust
- Calderdale Council
- Bradford Metropolitan District Council
- La-ser Europe Ltd
- Hartlepool Borough Council
- Redcar And Cleveland Borough Council
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- Middlesbrough Borough Council
- Health Innovation Network - South London
- Nottingham City Council (unitary)
- Telford And Wrekin Council
- Swindon Borough Council
- Nhis
- University Of Exeter
- Sandwell And West Birmingham Hospitals NHS Trust
- University Of Kent
- Hampshire Hospitals NHS Foundation Trust
- Oxford University Hospitals NHS Trust
- NHS Birmingham and Solihull Clinical Commissioning Group
- Erasmus University Medical Centre
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- Royal Brompton And Harefield NHS Trust
- Westmorland And Furness Council
- University Of Northumbria At Newcastle
- Department For Business And Trade
- Brighton & Hove City Council
- The Public Service Consultants Limited
- Kent County Council
- Young Epilepsy
- Non-specialist Acute Trusts In England
- London Borough Of Harrow
- Redcar & Cleveland Council (unitary)
- London Borough Of Wandsworth
- Islington Council
- Wiltshire Council
- NHS England
- NHS England Direct Commissioning
- British Society Of Gastroenterology
- Oliver Wyman Ltd
- NHS England
- University Of Essex
- Mckinsey & Company
- Plymouth City Council
- Digital Health And Care Wales
- Corevitas
- Capita
- Rm Partners
- NHS Improvement
- Northamptonshire County Council
- Hull University Teaching Hospitals NHS Trust
- Slough Borough Council
- Western General Hospital
- Pharmerit International
- Imperial College London Business School
- Competition & Markets Authority
- St James University Hospital NHS Trust
- Cheshire East Borough Council
- Stoke on Trent City Council
- University Hospitals Coventry And Warwickshire NHS Trust
- NHS England North (cumbria And North East)
- NHS England Midlands And East
- Plymouth University
- Isle of Man Department of Health & Social Care
- CSL-UK (CompuFile System Limited)
- Redcar & Cleveland Borough Council
- Poole Hospital NHS Foundation Trust
- Gstt @ Royal Brompton Hospital
- Pathway Communications Ltd
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- University Hospital Of South Manchester NHS Foundation Trust
- University Of Oxford, Department Of Paediatrics
- Bradford Teaching Hospitals NHS Foundation Trust
- Ipsos Mori
- Wilmington Healthcare
- 2020 Delivery
- Northern Cancer Alliance
- West Yorkshire And Harrogate Cancer Alliance
- Rod Gibson Associates Ltd
- South Yorkshire & Bassetlaw Cancer Alliance
- Department of Health (DH)
- Breast Test Wales
- North Central London Cancer Alliance
- University Of London (uol)
- Kent And Medway Cancer Alliance
- West Midlands Cancer Alliance
- Lancashire & South Cumbria Cancer Alliance
- Thames Valley Cancer Alliance
- Wessex Cancer Alliance
- Competition and Markets Authority
- NHS England (Skipton House)
- Greater Manchester Cancer Alliance
- Powys Teaching Lhb
- University Hospitals Of North Midlands NHS Trust
- FTI Consulting
- Trafford Council
- Beacon Consulting
- South East London Cancer Alliance
- NHS England (temporary National Repository)
- Cheshire And Merseyside Cancer Alliance
- Central Manchester University Hospitals NHS Foundation Trust
- NHS Trust Development Authority (ntda)
- East Of England - North Cancer Alliance
- The Dudley Group NHS Foundation Trust
- The Christie NHS Foundation Trust
- The Nuffield Department Of Surgical Sciences - Nds
- Lambeth London Borough Council
- Hull And East Yorkshire Hospitals NHS Trust
- Royal Derby Hospitals
- Dr. Foster
- Birmingham Children's Hospital NHS Foundation Trust
- Cedar, Cardiff and Vale UHB
- Kingston Hospital NHS Trust
- Beyond Compliance
- University Hospital of North Staffordshire
- Newcastle upon Tyne Hospitals NHS Foundation Trust
- Children's Commissioner's Office
- Experian Marketing Services
- Centre for Health Service Economics and Organisation
- St Helens & Knowsley Teaching Hospitals NHS Trust
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
- Health Education East Midlands
- Lancashire Care NHS Foundation Trust
- LONDON BOROUGH OF HAMMERSMITH & FULHAM
- NHS Improving Quality
- NHS Trust Development Authority
- Nice
- Birmingham Children’s Hospital
Organisations with projects that (partially or fully) honoured opt outs:
293 organisations (61 possibly dangerously if outside the TRE).
- Genomics England 🚩
- Public Health England (phe) 🚩
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- University College London (ucl) 🚩
- Care Quality Commission (cqc)
- University Of Cambridge 🚩
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Of Birmingham 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- University Of Bristol 🚩
- King's College London 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- University Of York 🚩
- North Bristol NHS Trust
- Uk Biobank
- University Of Leeds 🚩
- NHS England - X26
- Imperial College London 🚩
- University Of Surrey
- University Of Sheffield 🚩
- University Of Nottingham 🚩
- Royal College Of Psychiatrists
- Queen Mary University Of London 🚩
- Royal Liverpool University Hospital
- Nottingham University Hospitals NHS Trust
- The Brain Tumour Charity
- University Of Newcastle Upon Tyne 🚩
- Institute Of Cancer Research 🚩
- Cambridge University Hospitals NHS Foundation Trust
- Nec Software Solutions Uk Limited 🚩
- The Royal College Of Surgeons Of England
- St. Georges Hospital Medical School
- Health And Safety Executive 🚩
- Suffolk County Council
- University Of Aberdeen 🚩
- North Lincolnshire Council
- Brighton And Hove City Council
- City Of Bradford Metropolitan District Council
- Hampshire County Council
- Peterborough City Council
- Cornwall Council
- Wigan Metropolitan Borough Council
- Birmingham City Council
- Plymouth City Council
- Blackpool Borough Council
- Cheshire West And Chester Council
- Bury Metropolitan Borough Council
- Derbyshire County Council
- Sandwell Metropolitan Borough Council
- Devon County Council
- Essex County Council
- Nottinghamshire County Council
- Cambridgeshire County Council
- Sefton Metropolitan Borough Council
- Lincolnshire County Council
- Cheshire East Council
- Southampton City Council
- London Borough Of Havering
- Salford City Council
- West Sussex County Council
- Liverpool City Council
- Northumberland County Council
- Portsmouth City Council
- Stockport Metropolitan Borough Council
- East Sussex County Council
- East Riding Of Yorkshire Council
- Calderdale Metropolitan Borough Council
- Staffordshire County Council
- Wakefield Metropolitan District Council
- London Borough Of Sutton
- Hertfordshire County Council
- Buckinghamshire Council
- National Institute For Cardiovascular Outcomes Research 🚩
- Kirklees Council
- Blackburn With Darwen Borough Council
- Tameside Metropolitan Borough Council
- King's College Hospital NHS Foundation Trust
- Sunderland City Council
- London Borough Of Islington
- North East Lincolnshire Council
- Torbay Council
- Kent County Council
- London Borough Of Bromley
- Solihull Metropolitan Borough Council
- Leicestershire County Council
- Barnsley Metropolitan Borough Council
- London Borough Of Redbridge
- Dorset Council
- Manchester University NHS Foundation Trust 🚩
- Thurrock Council
- Warwickshire County Council
- Gloucestershire County Council
- London Borough Of Barking And Dagenham
- Leeds City Council
- Dudley Metropolitan Borough Council
- Oldham Metropolitan Borough Council
- Leicester City Council
- South Gloucestershire Council
- Warrington Borough Council
- Halton Borough Council
- Coventry City Council
- Rochdale Metropolitan Borough Council
- Surrey County Council
- Bracknell Forest Council
- Newcastle City Council
- Wirral Borough Council
- London Borough Of Barnet
- Royal Borough Of Kingston Upon Thames
- Norfolk County Council
- Isle Of Wight Council
- Doncaster Metropolitan Borough Council
- Trafford Metropolitan Borough Council
- London Borough Of Merton
- London Borough Of Southwark
- South Tyneside Council
- St Helens Council
- Lancashire County Council
- Knowsley Metropolitan Borough Council
- Wiltshire Council
- Northwest Ehealth Limited
- Medway Council
- Bath And North East Somerset Council
- London Borough Of Hounslow
- Bristol City Council
- London Borough Of Ealing
- City Of York Council
- London Borough Of Richmond Upon Thames
- Worcestershire County Council
- London School Of Hygiene And Tropical Medicine 🚩
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- London Borough Of Lewisham
- North Northamptonshire Council
- City Of Wolverhampton Council
- Royal Borough Of Greenwich
- Sheffield City Council
- Nottingham City Council
- Southend-on-sea Borough Council
- Manchester City Council
- Herefordshire Council
- Royal College Of Anaesthetists 🚩
- London Borough Of Bexley
- Cumberland Council
- London Borough Of Waltham Forest
- NHS England (quarry House) 🚩
- Royal College Of Physicians Of London 🚩
- The University Of Manchester 🚩
- Somerset Council
- National Institute For Health Research (nihr) Bioresource
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- London Borough Of Lambeth
- Cambridgeshire And Peterborough NHS Foundation Trust
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- University Of East Anglia 🚩
- London North West University Healthcare NHS Trust 🚩
- University Of Edinburgh
- University Of Dundee
- Newcastle University 🚩
- University Hospital Southampton NHS Foundation Trust 🚩
- University Of Southampton
- Iqvia Ltd 🚩
- Barts Health NHS Trust 🚩
- Royal Devon University Healthcare NHS Foundation Trust
- West Hertfordshire Teaching Hospitals NHS Trust
- University Of Glasgow
- Moorfields Eye Hospital NHS Foundation Trust
- University Of Liverpool
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- The Royal Wolverhampton NHS Trust
- Somerset County Council
- Cardiff University 🚩
- Keele University
- National Cjd Surveillance Unit
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- University Of Leicester
- Swansea University
- North Yorkshire Council
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC) 🚩
- NHS Blood And Transplant (nhsbt) 🚩
- National Institute For Health Research
- Nuvia Ltd
- Institute For Fiscal Studies
- NHS Wales Informatics Service (nwis)
- Northumbria Healthcare NHS Foundation Trust
- Milton Keynes University Hospital NHS Foundation Trust
- North Yorkshire County Council
- Cumbria County Council
- Oxford University Hospitals NHS Foundation Trust
- Great Ormond Street Hospital For Children NHS Foundation Trust
- University Of Warwick 🚩
- Uk Haemophilia Centre Doctors' Organisation
- Royal Free London NHS Foundation Trust 🚩
- St George's, University Of London
- Health & Social Care Information Centre
- Northgate Public Services (uk) Limited 🚩
- Derbyshire Healthcare NHS Foundation Trust
- Astrazeneca Ab
- Uk Health Security Agency
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- University Hospitals Bristol And Weston NHS Foundation Trust
- Society Of Endocrinology
- British Thoracic Society
- London Ambulance Service NHS Trust
- Intensive Care National Audit & Research Centre (ICNARC)
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Institute Of Occupational Medicine (iom) 🚩
- Saving Faces - The Facial Surgery Research Foundation
- Luton Borough Council
- Ims Health Ltd 🚩
- Sefton Council
- London Borough of Sutton Council
- London Borough of Redbridge Council
- Wirral Metropolitan Borough Council
- Ministry Of Defence (mod) 🚩
- Wakefield Council
- Bracknell Forest Borough Council
- Newcastle Upon Tyne City Council
- London Borough of Waltham Forest Council
- Liverpool University Hospitals NHS Foundation Trust
- West Hertfordshire Hospitals NHS Trust
- South Tyneside Metropolitan Borough Council
- Wolfson Institute Of Preventive Medicine 🚩
- Doncaster Council
- London Borough of Southwark Council
- East Anglian Air Ambulance
- St Helens Metropolitan Borough Council
- Royal Devon And Exeter NHS Foundation Trust
- York City Council
- London Borough Of Richmond Upon Thames Council
- Northamptonshire County Council
- London Borough Of Merton Council
- Southend on Sea Borough Council
- London Borough of Lewisham Council
- Wolverhampton City Council
- Kingston University
- Royal Borough Of Kingston-upon-thames Council
- Hmrc
- McKinsey & Company, Inc. United Kingdom 🚩
- The Medical School - Newcastle Upon Tyne 🚩
- Cancer Research Uk
- Addenbrooke's Hospital 🚩
- Royal Free & University College Medical School
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- Chelsea And Westminster Hospital NHS Foundation Trust
- Buckinghamshire County Council
- Warrington Borough Council (Unitary)
- Halton Borough Council (Unitary)
- Ucl Institute Of Education (ioe) 🚩
- Glasgow Caledonian University
- Erasmus University Rotterdam
- Royal Surrey County Hospital NHS Foundation Trust
- University Hospitals Bristol NHS Foundation Trust
- Office For National Statistics (ons) 🚩
- London Borough of Barnet Council
- London North West Healthcare NHS Trust
- London Borough of Greenwich
- London Borough of Lambeth Council
- Kirklees Metropolitan Council
- London Borough of Bexley Council
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- Informatica Systems Ltd
- Salford Royal NHS Foundation Trust 🚩
- Bradford City Metropolitan District Council
- Health & Safety Laboratory (hsl)
- The Institute for Fiscal Studies (IFS)
- Iqvia Solutions Uk Limited 🚩
- University College London Hospitals NHS Foundation Trust
- Nottinghamshire Healthcare NHS Foundation Trust
- Guy's And St Thomas' NHS Foundation Trust 🚩
- Institute Of Child Health
- Royal Borough of Kingston-Upon-Thames
- Gateshead Health NHS Foundation Trust
- Kingston University London
- Derbyshire Health NHS Foundation Trust
- Saving Faces
- Picker Institute Europe 🚩
- National Centre For Social Research
- Cause Action Ltd
- Medical Research Council Clinical Trials Unit
- Kings College Medical School
- Valneva Austria Gmbh
- Kings College Medical School
- Royal College Of Paediatrics & Child Health (rcpch)
- Dorset County Council
- Clinical Practice Research Datalink (cprd)
- St George's Hospital Medical School
- Office For National Statistics
- Southampton General Hosptial
- The Nuffield Trust 🚩
- Royal Surrey NHS Foundation Trust
- Derby Teaching Hospitals NHS Foundation Trust 🚩
- Havering London Borough Council
- Hackney Council
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/ICBs/CCGs
These are grouped in the release register, but audited (and fail) independently