NHS Digital Data Release Register - reformatted
This is a readable version of NHS England's Data Release Registers since April 2016 - the "complete" list of where NHS England sends data on hospital patients after being paid a processing fee, and whether that release respected opt outs or not. To make that choice for you and your family, medConfidential has details on how.
A small number of other data uses in COVID-19 is available from NHS Digital, in addition to an incomplete spreadsheet from NHS England withholding most data uses.
This page is updated roughly monthly when NHS England publish more data.
Did they respect the opt out (or sell your data anyway)?
For the last month we know about (2025/05), NHSD chose to respect optouts in 36% of 2222 data releases of personal data.
Was the National Data Opt Out respected:
- 1439: No - "Does not include the flow of confidential data"
- 306: Consent (Reasonable Expectation)
- 194: Yes
- 163: Statutory exemption to flow confidential data without consent
- 72: Mixture of confidential data flow(s) with support under section 251 NHS Act 2006 and "non-confidential" data flow(s)
- 37: Section 251 NHS Act 2006
- 8: Mixture of confidential data flow(s) with consent and flow(s) with support under section 251 NHS Act 2006
- 3: No -
Organisations with projects that fully ignored opt outs since 2018:
244 organisations since 2018.
- Monitor
- Carnall Farrar Limited
- Harvey Walsh Ltd
- Methods Analytics Ltd
- The Health Foundation
- London School Of Economics And Political Science (lse)
- Wilmington Healthcare
- The Nuffield Trust For Research And Policy Studies In Health Services
- Telstra Health Uk Limited
- National Audit Office
- Chks Limited
- Barts And The London School Of Medicine And Dentistry
- Health Iq Ltd
- I5 Health Limited
- Compufile Systems Limited
- The Newcastle Upon Tyne Hospitals NHS Foundation Trust
- Our Future Health
- Lightfoot Solutions Uk Ltd
- The Boston Consulting Group Uk Llp
- Rand Europe Community Interest Company
- Civil Eyes Research Ltd
- Novavax, Inc.
- NHS National Services Scotland
- Grail Bio Uk Ltd
- Cegedim Rx Ltd
- Derby City Council
- London Borough Of Hackney
- London Borough Of Newham
- Meditrends Ltd
- Walsall Metropolitan Borough Council
- Astrazeneca Uk Limited
- City Of Westminster
- London Borough Of Enfield
- Durham County Council
- London Borough Of Hillingdon
- Optum Health Solutions Uk Limited
- Oxfordshire County Council
- London Borough Of Tower Hamlets
- Bolton Metropolitan Borough Council
- Hull City Council
- Harrow Council
- London Borough Of Haringey
- Stoke-on-trent City Council
- Prescqipp Cic
- Met Office
- Cambridge Centre For Health Services Research
- Epsom And St Helier University Hospitals NHS Trust
- Gateshead Metropolitan Borough Council
- GLAXOSMITHKLINE RESEARCH & DEVELOPMENT LIMITED
- Home Office
- The King's Fund
- La-ser Europe Limited (a Certara Company)
- Public Health Scotland
- Bangor University
- Private Healthcare Information Network (phin)
- Medeanalytics International Limited
- University Of Bath
- NHS Coventry And Warwickshire Integrated Care Board
- Office For Health Improvement And Disparities
- Nec Software Solutions
- NHS Norfolk And Waveney Integrated Care Board
- Natcen Social Research
- Bedford Borough Council
- Device Access Uk Ltd
- Stockton-on-tees Borough Council
- University Hospitals Of Derby And Burton NHS Foundation Trust
- Crab Clinical Informatics
- Department For Transport
- Renal Registry
- London Borough Of Croydon
- Market And Opinion Research International Limited
- Archus Limited
- London Borough Of Camden
- Nuffield Department Of Primary Health Sciences
- Healthcare Quality Improvement Partnership (hqip)
- Northern Care Alliance NHS Foundation Trust
- Roehampton University
- University Hospitals Dorset NHS Foundation Trust
- Royal Papworth Hospital NHS Foundation Trust
- North Tyneside Council
- University Of Hull
- Department Of Health And Social Care
- I5 Health
- Adelphi Group Limited
- Kpmg Llp
- London Borough of Newham Council
- York And Scarborough Teaching Hospitals NHS Foundation Trust
- Ernst And Young Llp
- Dr. Foster Limited
- Ignite Data Limited
- London Borough of Tower Hamlets Council
- Westminster City Council
- Ipsos
- Adelphi Real World
- Rand Europe
- Royal National Orthopaedic Hospital NHS Trust
- Medway NHS Foundation Trust
- Oliver Wyman
- Regional Drug & Therapeutic Centre
- Digital Health And Care Wales
- National Institute For Health And Care Excellence (nice)
- Kingston Hospital NHS Foundation Trust
- Health Data Research Uk
- Northumberland, Tyne And Wear NHS Foundation Trust
- Leeds Teaching Hospitals NHS Trust
- 3m United Kingdom Plc
- Southend-on-sea Borough Council (unitary)
- Middlesbrough Borough Council
- 2020 Delivery Ltd
- Swindon Borough Council
- Gateshead Council
- Neil Wilson Associates Llp
- Telford and Wrekin Council (Unitary)
- NHS Central Register Scotland
- Birmingham Women's And Children's NHS Foundation Trust
- Calderdale Council
- Bradford Metropolitan District Council
- La-ser Europe Ltd
- Hartlepool Borough Council
- Redcar And Cleveland Borough Council
- Hull University Teaching Hospitals NHS Trust
- Westmorland And Furness Council
- Cumbria, Northumberland, Tyne And Wear NHS Foundation Trust
- Sandwell And West Birmingham Hospitals NHS Trust
- Royal Liverpool And Broadgreen University Hospitals NHS Trust
- Hampshire Hospitals NHS Foundation Trust
- Health Innovation Network - South London
- Nottingham City Council (unitary)
- University Of Exeter
- Telford And Wrekin Council
- Department For Business And Trade
- Nhis
- University Of Kent
- Erasmus University Medical Centre
- The Public Service Consultants Limited
- Oxford University Hospitals NHS Trust
- NHS Birmingham and Solihull Clinical Commissioning Group
- The Royal Marsden NHS Foundation Trust
- London Borough Of Newham Council
- University Of Northumbria At Newcastle
- Royal Brompton And Harefield NHS Trust
- Mac Clinical Research Finance Ltd
- Young Epilepsy
- Corevitas
- Brighton & Hove City Council
- Kent County Council
- Slough Borough Council
- Non-specialist Acute Trusts In England
- London Borough Of Harrow
- London Borough Of Wandsworth
- Redcar & Cleveland Council (unitary)
- Islington Council
- Imperial College Healthcare NHS Trust
- NHS England Direct Commissioning
- NHS England
- Wiltshire Council
- Oliver Wyman Ltd
- British Society Of Gastroenterology
- NHS England
- University Of Essex
- Mckinsey & Company
- Plymouth City Council
- Capita
- Rm Partners
- NHS Improvement
- Northamptonshire County Council
- Western General Hospital
- Competition & Markets Authority
- Pharmerit International
- Imperial College London Business School
- St James University Hospital NHS Trust
- Cheshire East Borough Council
- NHS England North (cumbria And North East)
- University Hospitals Coventry And Warwickshire NHS Trust
- Stoke on Trent City Council
- NHS England Midlands And East
- Plymouth University
- Poole Hospital NHS Foundation Trust
- CSL-UK (CompuFile System Limited)
- Redcar & Cleveland Borough Council
- Isle of Man Department of Health & Social Care
- Gstt @ Royal Brompton Hospital
- LONDON BOROUGH OF HAMMERSMITH & FULHAM
- University Hospital Of South Manchester NHS Foundation Trust
- University Of Oxford, Department Of Paediatrics
- Vanguard - Moorfields Eye Hospital NHS Foundation Trust
- Pathway Communications Ltd
- Local Authorities: Data Has Been Made Available To The Public Health Sections Of 91 Councils
- Ipsos (market Research) Ltd
- Bradford Teaching Hospitals NHS Foundation Trust
- Wilmington Healthcare
- Ipsos Mori
- 2020 Delivery
- North Central London Cancer Alliance
- West Midlands Cancer Alliance
- West Yorkshire And Harrogate Cancer Alliance
- Northern Cancer Alliance
- University Of London (uol)
- Lancashire & South Cumbria Cancer Alliance
- Breast Test Wales
- Wessex Cancer Alliance
- Rod Gibson Associates Ltd
- Department of Health (DH)
- Kent And Medway Cancer Alliance
- South Yorkshire & Bassetlaw Cancer Alliance
- Thames Valley Cancer Alliance
- FTI Consulting
- Beacon Consulting
- Competition and Markets Authority
- University Hospitals Of North Midlands NHS Trust
- Greater Manchester Cancer Alliance
- Powys Teaching Lhb
- Trafford Council
- NHS England (Skipton House)
- NHS England (temporary National Repository)
- South East London Cancer Alliance
- NHS Trust Development Authority (ntda)
- Cheshire And Merseyside Cancer Alliance
- Central Manchester University Hospitals NHS Foundation Trust
- East Of England - North Cancer Alliance
- The Dudley Group NHS Foundation Trust
- Lambeth London Borough Council
- Hull And East Yorkshire Hospitals NHS Trust
- The Christie NHS Foundation Trust
- The Nuffield Department Of Surgical Sciences - Nds
- Royal Derby Hospitals
- Dr. Foster
- Birmingham Children's Hospital NHS Foundation Trust
- Experian Marketing Services
- Newcastle upon Tyne Hospitals NHS Foundation Trust
- Cedar, Cardiff and Vale UHB
- Health Education East Midlands
- Lancashire Care NHS Foundation Trust
- Beyond Compliance
- Centre for Health Service Economics and Organisation
- Nice
- St Helens & Knowsley Teaching Hospitals NHS Trust
- Birmingham Children’s Hospital
- NHS Trust Development Authority
- University Hospital of North Staffordshire
- Children's Commissioner's Office
- Northern Lincolnshire and Goole Hospitals NHS Foundation Trust
- NHS Improving Quality
- Kingston Hospital NHS Trust
Organisations with projects that (partially or fully) honoured opt outs:
293 organisations (62 possibly dangerously if outside the TRE).
- Genomics England 🚩
- Public Health England (phe) 🚩
- University Of Oxford 🚩
- Medicines And Healthcare Products Regulatory Agency (mhra) 🚩
- University College London (ucl) 🚩
- Care Quality Commission (cqc)
- University Of Cambridge 🚩
- Royal College Of Obstetricians And Gynaecologists (rcog) 🚩
- University Of Birmingham 🚩
- University Hospitals Birmingham NHS Foundation Trust 🚩
- University Of Bristol 🚩
- King's College London 🚩
- South London And Maudsley NHS Foundation Trust 🚩
- University Of York 🚩
- North Bristol NHS Trust
- Uk Biobank
- University Of Leeds 🚩
- Imperial College London 🚩
- NHS England - X26
- University Of Surrey
- University Of Sheffield 🚩
- University Of Nottingham 🚩
- Royal College Of Psychiatrists
- Queen Mary University Of London 🚩
- Royal Liverpool University Hospital
- University Of Newcastle Upon Tyne 🚩
- Nottingham University Hospitals NHS Trust
- The Brain Tumour Charity
- Institute Of Cancer Research 🚩
- Cambridge University Hospitals NHS Foundation Trust
- Nec Software Solutions Uk Limited 🚩
- The Royal College Of Surgeons Of England
- St. Georges Hospital Medical School
- Health And Safety Executive 🚩
- Suffolk County Council
- University Of Aberdeen 🚩
- Brighton And Hove City Council
- North Lincolnshire Council
- City Of Bradford Metropolitan District Council
- Birmingham City Council
- Cornwall Council
- Wigan Metropolitan Borough Council
- Hampshire County Council
- Peterborough City Council
- Blackpool Borough Council
- Cheshire West And Chester Council
- Plymouth City Council
- Sefton Metropolitan Borough Council
- Sandwell Metropolitan Borough Council
- Derbyshire County Council
- Bury Metropolitan Borough Council
- Devon County Council
- Nottinghamshire County Council
- Essex County Council
- Cambridgeshire County Council
- Wakefield Metropolitan District Council
- London Borough Of Sutton
- Cheshire East Council
- London Borough Of Havering
- East Riding Of Yorkshire Council
- Salford City Council
- East Sussex County Council
- Staffordshire County Council
- Northumberland County Council
- Stockport Metropolitan Borough Council
- Portsmouth City Council
- West Sussex County Council
- Calderdale Metropolitan Borough Council
- Buckinghamshire Council
- Southampton City Council
- Liverpool City Council
- Hertfordshire County Council
- Kirklees Council
- London Borough Of Bromley
- London Borough Of Redbridge
- Blackburn With Darwen Borough Council
- Tameside Metropolitan Borough Council
- Solihull Metropolitan Borough Council
- Sunderland City Council
- Kent County Council
- Torbay Council
- London Borough Of Islington
- North East Lincolnshire Council
- Barnsley Metropolitan Borough Council
- Dorset Council
- Leicestershire County Council
- Lincolnshire County Council
- Warwickshire County Council
- Thurrock Council
- London Borough Of Barking And Dagenham
- Leicester City Council
- Dudley Metropolitan Borough Council
- South Gloucestershire Council
- Oldham Metropolitan Borough Council
- Warrington Borough Council
- Halton Borough Council
- Leeds City Council
- Gloucestershire County Council
- Newcastle City Council
- Wirral Borough Council
- Bracknell Forest Council
- Surrey County Council
- Coventry City Council
- Rochdale Metropolitan Borough Council
- King's College Hospital NHS Foundation Trust
- National Institute For Cardiovascular Outcomes Research 🚩
- London Borough Of Barnet
- Manchester University NHS Foundation Trust 🚩
- Royal Borough Of Kingston Upon Thames
- Norfolk County Council
- Isle Of Wight Council
- Doncaster Metropolitan Borough Council
- London Borough Of Merton
- London School Of Hygiene And Tropical Medicine 🚩
- London Borough Of Southwark
- Trafford Metropolitan Borough Council
- South Tyneside Council
- St Helens Council
- Lancashire County Council
- Wiltshire Council
- Knowsley Metropolitan Borough Council
- Medway Council
- Bath And North East Somerset Council
- London Borough Of Hounslow
- Bristol City Council
- London Borough Of Ealing
- City Of York Council
- London Borough Of Richmond Upon Thames
- Northwest Ehealth Limited
- Worcestershire County Council
- London Borough Of Lewisham
- City Of Wolverhampton Council
- North Northamptonshire Council
- Royal Borough Of Greenwich
- Sheffield City Council
- Nottingham City Council
- Southend-on-sea Borough Council
- Manchester City Council
- Herefordshire Council
- Royal College Of Anaesthetists 🚩
- HEALTH & SOCIAL CARE INFORMATION CENTRE
- Cumberland Council
- London Borough Of Bexley
- London Borough Of Waltham Forest
- Royal College Of Physicians Of London 🚩
- NHS England (quarry House) 🚩
- Somerset Council
- The University Of Manchester 🚩
- National Institute For Health Research (nihr) Bioresource
- London Borough Of Lambeth
- Gloucestershire Hospitals NHS Foundation Trust 🚩
- Cambridgeshire And Peterborough NHS Foundation Trust
- Liverpool Heart And Chest Hospital NHS Foundation Trust
- University Of East Anglia 🚩
- London North West University Healthcare NHS Trust 🚩
- University Of Dundee
- University Hospital Southampton NHS Foundation Trust 🚩
- University Of Edinburgh 🚩
- Newcastle University 🚩
- University Of Southampton
- Iqvia Ltd 🚩
- Barts Health NHS Trust 🚩
- Royal Devon University Healthcare NHS Foundation Trust
- West Hertfordshire Teaching Hospitals NHS Trust
- University Of Glasgow
- University Of Liverpool
- Moorfields Eye Hospital NHS Foundation Trust
- Norfolk And Norwich University Hospitals NHS Foundation Trust
- Cardiff University 🚩
- The Royal Wolverhampton NHS Trust
- Keele University
- Somerset County Council
- National Cjd Surveillance Unit
- MCKINSEY & COMPANY, INC. UNITED KINGDOM
- University Of Leicester
- Swansea University
- North Yorkshire Council
- Institute For Fiscal Studies
- INTENSIVE CARE NATIONAL AUDIT & RESEARCH CENTRE (ICNARC) 🚩
- National Institute For Health Research
- NHS Blood And Transplant (nhsbt) 🚩
- Nuvia Ltd
- Milton Keynes University Hospital NHS Foundation Trust
- Northumbria Healthcare NHS Foundation Trust
- University Of Warwick 🚩
- NHS Wales Informatics Service (nwis)
- Oxford University Hospitals NHS Foundation Trust
- Great Ormond Street Hospital For Children NHS Foundation Trust
- North Yorkshire County Council
- Uk Haemophilia Centre Doctors' Organisation
- Cumbria County Council
- Royal Free London NHS Foundation Trust 🚩
- St George's, University Of London
- Health & Social Care Information Centre
- Northgate Public Services (uk) Limited 🚩
- Astrazeneca Ab
- Derbyshire Healthcare NHS Foundation Trust
- Uk Health Security Agency
- ROYAL COLLEGE OF PAEDIATRICS & CHILD HEALTH (RCPCH)
- University Hospitals Bristol And Weston NHS Foundation Trust
- Luton Borough Council
- Society Of Endocrinology
- British Thoracic Society
- London Ambulance Service NHS Trust
- Saving Faces - The Facial Surgery Research Foundation
- Institute Of Occupational Medicine (iom) 🚩
- Intensive Care National Audit & Research Centre (ICNARC)
- West Hertfordshire Hospitals NHS Trust (whht) 🚩
- Ims Health Ltd 🚩
- Liverpool University Hospitals NHS Foundation Trust
- East Anglian Air Ambulance
- Sefton Council
- London Borough of Sutton Council
- Wakefield Council
- London Borough of Redbridge Council
- Ministry Of Defence (mod) 🚩
- Wirral Metropolitan Borough Council
- Newcastle Upon Tyne City Council
- Bracknell Forest Borough Council
- Wolfson Institute Of Preventive Medicine 🚩
- South Tyneside Metropolitan Borough Council
- Doncaster Council
- London Borough of Waltham Forest Council
- West Hertfordshire Hospitals NHS Trust
- London Borough of Southwark Council
- Sheffield Teaching Hospitals NHS Foundation Trust 🚩
- St Helens Metropolitan Borough Council
- Royal Devon And Exeter NHS Foundation Trust
- Northamptonshire County Council
- York City Council
- Kingston University
- London Borough Of Richmond Upon Thames Council
- London Borough Of Merton Council
- London Borough of Lewisham Council
- Southend on Sea Borough Council
- Wolverhampton City Council
- Royal Borough Of Kingston-upon-thames Council
- Cancer Research Uk
- Hmrc
- McKinsey & Company, Inc. United Kingdom 🚩
- The Medical School - Newcastle Upon Tyne 🚩
- Addenbrooke's Hospital 🚩
- Royal Free & University College Medical School
- The Clatterbridge Cancer Centre NHS Foundation Trust 🚩
- Chelsea And Westminster Hospital NHS Foundation Trust
- Buckinghamshire County Council
- Erasmus University Rotterdam
- Glasgow Caledonian University
- Warrington Borough Council (Unitary)
- Halton Borough Council (Unitary)
- Ucl Institute Of Education (ioe) 🚩
- Royal Surrey County Hospital NHS Foundation Trust
- Office For National Statistics (ons) 🚩
- University Hospitals Bristol NHS Foundation Trust
- London North West Healthcare NHS Trust
- London Borough of Lambeth Council
- London Borough of Barnet Council
- London Borough of Greenwich
- Kirklees Metropolitan Council
- London Borough of Bexley Council
- Informatica Systems Ltd
- Salford Royal NHS Foundation Trust 🚩
- Health & Safety Laboratory (hsl)
- Bradford City Metropolitan District Council
- The Institute for Fiscal Studies (IFS)
- Iqvia Solutions Uk Limited 🚩
- Nottinghamshire Healthcare NHS Foundation Trust
- University College London Hospitals NHS Foundation Trust
- Institute Of Child Health
- Guy's And St Thomas' NHS Foundation Trust 🚩
- Royal Borough of Kingston-Upon-Thames
- Derbyshire Health NHS Foundation Trust
- Kingston University London
- Saving Faces
- Gateshead Health NHS Foundation Trust
- National Centre For Social Research
- Picker Institute Europe 🚩
- Cause Action Ltd
- Medical Research Council Clinical Trials Unit
- Kings College Medical School
- St George's Hospital Medical School
- Valneva Austria Gmbh
- Dorset County Council
- Royal College Of Paediatrics & Child Health (rcpch)
- Office For National Statistics
- Kings College Medical School
- Clinical Practice Research Datalink (cprd)
- Derby Teaching Hospitals NHS Foundation Trust 🚩
- Southampton General Hosptial
- Hackney Council
- Havering London Borough Council
- Royal Surrey NHS Foundation Trust
- The Nuffield Trust 🚩
Projects above are ordered by volumes of data they receive (longer projects or more data appear higher).
CSU/ICBs/CCGs
These are grouped in the release register, but audited (and fail) independently